Support for Patients and Caregivers

Patient organisations

Dravet syndrome patient organisations are very active across Europe and they do a huge amount of work to support people with Dravet syndrome and their families through information, education and medical research. They also play a vital role in helping families of Dravet syndrome patients make connections with other families.

There are patient organisations at country level throughout Europe and there is also a European Federation which represents all of the country level organisations.

The Dravet Syndrome European Federation (DSEF) has a list of the Dravet syndrome patient organisations in different countries on its website.

This website is intended for patients in Europe who have been prescribed Fintepla and their caregivers

This medicine is subject to additional monitoring. This will allow quick identification of new safety information. You can help by reporting any side effects you or the person you care for may experience. See the What to look out for section for how to report side effects.

Fintepla is a medicine which is prescribed to treat the seizures that patients with Dravet syndrome can experience. Fintepla is used with other drugs to treat seizures in Dravet syndrome patients aged 2 years of age and older.

Dravet syndrome is a rare form of epilepsy which usually starts when a child is less than 1 year old. Patients who suffer from it often have very frequent and severe seizures. You can learn more about Dravet syndrome here.